A dedicated online channel has been set up for young people with Kawasaki disease.
The new online resource, created by a Newark-based charity, aims to answer questions that may be affected by the disease without the topic locked.
It contains up-to-date, reliable information – backed by Kawasaki disease experts – which causes blood vessels to become inflamed and swollen.
Faceless shot of modern black businesswoman working on laptop and typing on keyboard at table in office. (45722599)
Behind the My Societi channel is the Newark-based charity Societi Foundation.
Rachael McCormack of Societi said, “Young people affected by Kawasaki disease face many problems, increased lifelong risks and some levels of insecurity.
“For those most severely affected by permanent heart damage, young people live at risk of a major heart event like a heart attack. As a teenager, this can be a lot to deal with.
“With a lot of outdated and often inaccurate information and way too much scary writing about Kawasaki disease, as a mom I wanted to create an online place where young people can find doctor-assisted answers to questions as well as support by know that you are not alone. “
Pediatric cardiologist Professor Robert Tulloh said, “There are a growing number of young people now living with Kawasaki disease and, sensibly, young people have questions.
“My society is going to play a really important role here. It contains information for the target group of 13 to 18 year olds as well as personal experiences and age-appropriate content that give young people with Kawasaki disease an understanding of their diagnosis and its significance.
“They can learn more about important issues and risks they may be exposed to and make informed judgments about their own health and lifestyle in adulthood.”
Further information can be found at https://mysocieti.org.uk/